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Jewish Journal

Tag: Rare Disease

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  • A Small Man With Big Dreams

    By Gaby Friedman

    December 1, 2005 | 7:00 pm

    Thirty-seven year old Ami Ankilewitz weighs just 39 pounds; he suffers from a rare disease called spinal muscular atrophy, which has prevented his muscles from growing and functioning. As a result, his body is skeletal; his small, fragile bones seem mangled and twisted, thinly...

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