Jewish Journal

Tag: Hibm

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  • Jennifer’s power

    By David Suissa

    November 4, 2014 | 5:26 pm

    How do you deal with a future that you know for sure is going to get worse? That was the question on my mind when I met Jennifer, a mother of two who has a rare neuromuscular disease called hereditary inclusion body myopathy (HIBM). I was introduced to Jennifer (she asked me not to...

  • Webcast: A.R.M.‘s Iranian Jewish Doctors Racing for HIBM Cure

    By Karmel Melamed

    December 7, 2009 | 7:18 pm

    Last year I had the special opportunity to attend a gala event for the Advancement of Research for Myopathies (ARM), a non-profit based in Encino. The organization’s Iranian Jewish doctors, Daniel and Babak Darvish, have been at the forefront of seeking a cure for “Hereditary...

  • Theo for Jews in Poland, Italian seder, HIBM awareness

    By Danielle Berrin

    April 10, 2008 | 6:00 pm

    Theodore Bikel Plugs Jewish Life in Poland

    Passionately devoted to the resurgence of Jewish life in Poland, entertainer Theodore Bikel, accompanied by Tamara Brooks, performed an hour-long private concert of Yiddish, English and Hebrew songs to benefit the nonprofit Friends of Jewish...

  • Photo essay: A.R.M. is removing stigma of disabilities among Iranian Jewry

    By Karmel Melamed

    March 17, 2008 | 8:49 pm

    Some of the country’s top medical researchers were honored at a gala event on March 16th held at the Los Angeles Airport Marriott, for their work by the Advancement of Research for Myopathies (ARM), a non-profit based in Encino. Close to 600 guests from various countries and...