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Jewish Journal

Tag: Hereditary Inclusion Body Myopathy

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  • Jennifer’s power

    By David Suissa

    November 4, 2014 | 5:26 pm

    How do you deal with a future that you know for sure is going to get worse? That was the question on my mind when I met Jennifer, a mother of two who has a rare neuromuscular disease called hereditary inclusion body myopathy (HIBM). I was introduced to Jennifer (she asked me not to...

  • Theo for Jews in Poland, Italian seder, HIBM awareness

    By Danielle Berrin

    April 10, 2008 | 6:00 pm

    Theodore Bikel Plugs Jewish Life in Poland

    Passionately devoted to the resurgence of Jewish life in Poland, entertainer Theodore Bikel, accompanied by Tamara Brooks, performed an hour-long private concert of Yiddish, English and Hebrew songs to benefit the nonprofit Friends of Jewish...

  • Muscular Disorder Won’t Stop Siblings

    By Nancy Sokoler Steiner

    November 21, 2002 | 7:00 pm

    As young adults, brothers Babak and Daniel Darvish, born less than two years apart, were avid athletes, music lovers and medical students who planned to become surgeons. But about five years ago, they discovered that they shared something besides their hobbies and professional...

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