When he was 6 years old, Los Angeles artist Ted Meyer had two life-changing experiences. He won his first art show prize after copying a flamingo drawn by an older friend. Secondly, he was diagnosed as suffering from Gaucher Disease after intensive bouts of pain in his knees and hip bones.
Gaucher is sufficiently rare that many doctors weren't and still aren't aware of it. And when LaBelle was diagnosed, "they were just doing research, and there was not a glimmer of hope" for a treatment, she said
In the first moments after Lori Marx-Rubiner was diagnosed with breast cancer last year, several fears ran through her head. The Jewish community social worker, who was 35 at the time, wondered about her mortality and worried about the prospect of pain and nausea induced by treatment. However, her deepest concern centered on her then 3-year-old son, Zachary.