March 31, 2005
Parshat Shemini (Leviticus 9:1-11:47)
The Chasidic Reb Nachman of Bratslav tells of a king's son who goes mad: he believes he is a turkey.
The boy removes all his clothes, spends all his time under a table and refuses to eat normal food. Distraught and alarmed, his father summons in all manner of experts, but none can cure the boy.
His tale of disappointment turns into a tale of revisioning and change: After a long time, a wise man arrives at the palace, and asks to see the prince. The wise man joins the boy under the table, and declares himself to be a turkey. Little by little, the two become comfortable with one another, and gradually the man encourages the turkey-prince to put on his clothes, then eat human food and finally to join the rest of the family. In this manner, the Chasidic master says, the wise man cures the prince.
I think of this story often as I meet with parents of children with special needs. Once a month, we gather to study Torah and offer each other support in the challenges of raising children with a wide variety of disorders, from autism to bipolar disorder to Tourette's syndrome to ADD (my own middle son is a 9-year-old with autism). Parenting such children, one can easily empathize with Rabbi Nachman's king, who is confused, saddened and desperate to help his son.
By joining the child in his world, the sage first transforms himself, ultimately paving the way for the transformation of the child. For many parents of special-needs children -- often highly unusual children whose neurological, emotional or physical makeup prevent them from relating to the world in typical ways -- this painstaking, exhausting approach is sometimes the only effective one. Parents who want to reach their children journey -- for days, months, years -- out of typical life and into their child's orbit. They join them under the table -- a powerful way to reach one's child. But it is also difficult and often terribly isolating.
In this week's Torah portion, two of Aaron's sons, Nadav and Avihu, themselves act in an unusual way. They enter the sanctuary and -- as the Torah describes it -- "offer strange fire" to God. (It might have been an isolated incident, but could have been the final act of years of this kind of behavior.) As a result, the two young men are punished and wiped out by God. But what was their "strange fire"? Some interpreters suggest that it was something impure, a sign of arrogance, rude behavior and crossed forbidden boundaries. But others, sympathetic to the two, argue that it was their overflowing passion for God -- their uncontrollable desire to be close to the divine -- that ultimately burned them.
Fire can be dangerous and harmful. But it is also the source of light and heat. The parsha is silent on the community's response to the strange fire. What was their communal response? What if the community had seen the boys' fire in a different way? What if they had been seen by parents, mentors and peers as warm and inspiring, instead of treacherous and out of bounds? What if their fire had been taken not as destructive to others but enlightening? A strange fire, perhaps, but an acceptable one? Different, but not deplorable?
The strange fire alight in my son is called autism. And we are not alone: One child in every 166 nationwide is now diagnosed with autism. The Jewish community is not immune to this epidemic. The children affected by autism and other disorders are challenging, unusual and, sometimes, distracting. But they are also beautiful, creative, loving and bright, and -- as Jewish tradition teaches -- made in God's image.
And they are ours.
Was the turkey-prince really cured by the wise man? Probably not. He probably always retained his unusual disposition, probably always felt a little odd and might have even yearned to slide back under the table. But the sage reached the child, and this allowed the child to find his place in the community.
Perhaps, instead of seeing a dangerous, uncontrolled combustion, we can begin to perceive the holy fire of these children as precious; something divinely given and burning with a holy passion. Something for our entire community -- our synagogues, schools, youth groups, camps and social circles -- to warm ourselves by. Something not to for us to transform, but to transform us.
Rabbi Shawn Fields-Meyer is founder and facilitator of Ozreinu, a spiritual support group for parents of special-needs children. She can be reached by e-mail at firstname.lastname@example.org.