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Foundations Try to Stop a Jewish Killer


URL: http://www.jewishjournal.com/community_briefs/article/foundations_try_to_stop_a_jewish_killer_20030501

Imagine a disease that strips a child of the routine autonomic and sensory abilities that we take for granted. A disease that affects a child's nervous system to such a degree that he or she cannot feel pain or produce tears, even when seriously wounded. The child becomes plagued with developmental delays, both physical and cognitive, and must be fed through gastric tubes to prevent inhaling food through the windpipe instead of down the esophagus. He or she experiences severe vision problems, breathing episodes, seizures, an absence of taste, cyclical vomiting, unstable blood pressure, fainting spells, excessive sweating, skin blotching and other abnormalities. The child also incurs numerous hospital stays, frequent surgeries and enormous medical bills. Worst of all, the disease statistically guarantees that the child will not live to see his or her preteens.

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