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A Small Man With Big Dreams


URL: http://www.jewishjournal.com/arts/article/a_small_man_with_big_dreams_20051202

Thirty-seven year old Ami Ankilewitz weighs just 39 pounds; he suffers from a rare disease called spinal muscular atrophy, which has prevented his muscles from growing and functioning. As a result, his body is skeletal; his small, fragile bones seem mangled and twisted, thinly covered by skin pulled tight. His eyes stare out dark and black from a gaunt, bony face, which appears too large and too animated for Ami's debilitated body.

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