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A Decrease in Vigilance

Fewer couples are testing for Tay-Sachs and other Jewish genetic diseases.

URL: http://www.jewishjournal.com/health/article/a_decrease_in_vigilance_20010126

A conference on genetic diseases held by the Cultural Foundation of Habib Levy in November led The Journal to examine the Jewish community's reduced state of awareness about genetic testing for prospective parents. During the past 30 years, large-scale genetic screening of Ashkenazi Jews in the U.S., Israel and other countries has reduced the number of babies born with Tay-Sachs, the most widely known Jewish genetic disease, by 90 percent. Yet today, younger Jews are less conscious of Tay-Sachs and even less aware of testing made available during the past five years for a newer array of genetic diseases. Geneticists and physicians confirmed that many people are not adequately informed about their genetic testing options. Regardless of their educational background, few individuals know if they fall into a high-risk category for genetically transmitted diseases. Experts interviewed maintain there has been a relaxation in vigilance about carrier screening and a consequential rise in danger signals for American Jews of Ashkenazi descent.

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